Wednesday, December 1, 2010

Still Day 27

Got down to OR, signed consent, she had a fever, was shaking, both knees red and hot, and had been coughing a bit more. Since the bone biopsy and endoscopy weren't urgent, they have postponed all procedures. The best guess presently is Graft vs. Host Disease(GVHD). The problem is it is not presenting like GVHD or an infection. Took 2 biopsies from from the left knee area. Blood cultures for fever and adding an antibiotic. Had a chest x-ray. Wait and see what pans out tomorrow. Her nausea is final under control with the right combination of new drugs. She ate jello last night and liked it. That is something she typically would never order. She has been a little more lethargic today, but she hasn't slept for 2 nights. That also increases the risk for seizures, but they cannot give her anything to sleep either. The GVHD typically is treated with high dose steroids which causes more risk for the viral infection in the brain and risk of seizures. They are running on a very thin line. Everything they do causes risk to her in one way or the other, but there is no other choice except to deal with what comes each day. For every good thing that a drug does, it has risks. Kelsey is amazing. Even when she doesn't know the answer, she is cute, playful, and witty. She has even begun playing games testing us back. I don't think she knows it's a game, but it is the clever Kelsey in there. One of my mom's friends shared that this could be just God's way of sparing her all the pain she's going through. Could be. Only He knows the path she is on. Whatever it is, He is in control. We still find laughter every day...really we do. I think that even the doctors see the joy we are experiencing. She has the most pleasant demeanor, smiling like a Cheshire cat, mostly bright eyed(until today), and just cute to watch, and funny to talk to. What more could you ask for...yeah, yeah....good health. It's a coming!
Love,
Mom

5 comments:

  1. Dear Tammy, You are amazing, God is sustaining you and your precious Kelsey..Florence is in my ALWAYS Add the Love group and in our Bible study.. we have been reading your blogs and praying and praying..God is in control and His plan is amazing..Your faith is wonderful...an awesome blessing..love you and your family and we have never met..Blessings, Dianne Orr Hartzell

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  2. I love reading your stories and just love your family. Tyler is such a blessing in Mike's life, a real God send. I pray that as you tend to your precious daughter, God will continue tending to other pressing issues in the daily practical world back home. His peace is yours, His love is yours, You are HIS!!! I always feel close to your family when I read this blog. God is full of surprises and is perfect in all of his ways. My prayer is that of the apostles in Acts 4:20 "...By stretching forth thine hand to heal; and that signs and wonders may be done by the name of thy holy child Jesus." -Loren Sprowl

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  3. Praying for you all throughout the days. So many people are. What you shared in this post is beyond precious. Sending love from the Crows.

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  4. I'm a friend of Angie's from high school and remember meeting Kelsey many years ago. Reading your blog is so profound and inspiring. Just wanted you to know I'm praying for you and your family today. Jen Friesen

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  5. We continue to pray 3 times a day specifically for Kelsey, Karly and your family. We find our faith growing as you share your story. Most of all we wish you and your family peace. Prayers X 3 everyday from the 3 of us. Jana, Chad & Ruby-Kathleen Wright (MCE & UC)

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