Still Day 27

Got down to OR, signed consent, she had a fever, was shaking, both knees red and hot, and had been coughing a bit more. Since the bone biopsy and endoscopy weren't urgent, they have postponed all procedures. The best guess presently is Graft vs. Host Disease(GVHD). The problem is it is not presenting like GVHD or an infection. Took 2 biopsies from from the left knee area. Blood cultures for fever and adding an antibiotic. Had a chest x-ray. Wait and see what pans out tomorrow. Her nausea is final under control with the right combination of new drugs. She ate jello last night and liked it. That is something she typically would never order. She has been a little more lethargic today, but she hasn't slept for 2 nights. That also increases the risk for seizures, but they cannot give her anything to sleep either. The GVHD typically is treated with high dose steroids which causes more risk for the viral infection in the brain and risk of seizures. They are running on a very thin line. Everything they do causes risk to her in one way or the other, but there is no other choice except to deal with what comes each day. For every good thing that a drug does, it has risks. Kelsey is amazing. Even when she doesn't know the answer, she is cute, playful, and witty. She has even begun playing games testing us back. I don't think she knows it's a game, but it is the clever Kelsey in there. One of my mom's friends shared that this could be just God's way of sparing her all the pain she's going through. Could be. Only He knows the path she is on. Whatever it is, He is in control. We still find laughter every day...really we do. I think that even the doctors see the joy we are experiencing. She has the most pleasant demeanor, smiling like a Cheshire cat, mostly bright eyed(until today), and just cute to watch, and funny to talk to. What more could you ask for...yeah, yeah....good health. It's a coming!
Love,
Mom