Not much new. Her body temp is still perplexing and causing concern. The doctors have been able to find some case studies that have reported this body temp change as a result of the brain infection. I think that if we left her temp alone it would just stay too low, but we cover her with the heat machine blanket to get it normal and sometimes over shoot it too high. This would indeed be the temp regulatory part of her brain. What is concerning is that she looks better clinically, but then this part of the brain is not acting normal and why now when she seems to be improving. She didn't sleep much last night, therefore slept most of the day today. When she does this, we can't get much done with feeding and therapies. However, she did wake up this evening after a bout with temp too high, horrible belly pain, and body pain. She blasted out a huge amount of "you know what" which was great. Her temp is starting to level out. She ate some baby food, talked with the kids, and Alex on the phone. Tracy plans on spending the night with her again tonight. She had her LP today, so we should have some results from this tomorrow. Her brain MRI is planned for Friday. As always, everyday they have to adjust volumes of meds and types of meds. I would love to see her get some strength in her legs enough to gain the confidence of her therapists. This would be a huge gain and one that would make it easier to move back to her peds floor. Continue to pray for wisdom through all of this.
Gotta go sleep.
Love,
Mom
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Tammy and Tracy,
ReplyDeleteI was praying for Kelsey the other morning and found myself meditating on the 23rd Psalm. I know you know it but I want to write it out here.
"The Lord is my shepherd; I shall not want.
He makes me lie down in green pastures;
He leads me beside still waters; He restores my soul.
He guides me in the path of righteousness for His name's sake.
Even though I walk through the valley of the shadow of death, I fear no evil for You are with me.
Your rod and staff comfort me;
You prepare at table before me in the presence of my enemies;
You have anointed my head with oil;
My cup overflows.
Surely goodness and mercy shall follow me all the days of my life, and I will dwell in the house of the Lord forever."
Note in this psalm that God is doing all the work and we are just here to respond and trust in Him, just like you are doing. We are continuing to fast and pray.
God is so good; His ways are far beyond what we can understand, but he reveals some to us. Why because He loves each and every one of us--no exceptions. He will never leave you or Kelsey or any others of your family.
We are here for you.
Love, Annie for all the Brueggens