Not much new. Her body temp is still perplexing and causing concern. The doctors have been able to find some case studies that have reported this body temp change as a result of the brain infection. I think that if we left her temp alone it would just stay too low, but we cover her with the heat machine blanket to get it normal and sometimes over shoot it too high. This would indeed be the temp regulatory part of her brain. What is concerning is that she looks better clinically, but then this part of the brain is not acting normal and why now when she seems to be improving. She didn't sleep much last night, therefore slept most of the day today. When she does this, we can't get much done with feeding and therapies. However, she did wake up this evening after a bout with temp too high, horrible belly pain, and body pain. She blasted out a huge amount of "you know what" which was great. Her temp is starting to level out. She ate some baby food, talked with the kids, and Alex on the phone. Tracy plans on spending the night with her again tonight. She had her LP today, so we should have some results from this tomorrow. Her brain MRI is planned for Friday. As always, everyday they have to adjust volumes of meds and types of meds. I would love to see her get some strength in her legs enough to gain the confidence of her therapists. This would be a huge gain and one that would make it easier to move back to her peds floor. Continue to pray for wisdom through all of this.
Gotta go sleep.