Day 47

Today was a good day. Good because we had a Kelsey who talked, ate, did her therapies, and was as sweet as could be. The body temp remained constant all night and all day. We added a beanie and footies which probably helped. She was out of bed on her feet for about 10 minutes. She stretched and did 3 plies(Ballet term). The nurse heated up a few towels and robes which we applied to her back side. She only lost .3 degrees instead of 3 degrees. The IV feeding was stopped, and we were given a normal diet to work within. I'm not sure how we did, but I feel as though we pushed as hard as we could to get the calories in. She did meet the water intake. If we can continue days like this, she could soon make it back to her other room. She has her lumbar puncture tomorrow. Again, this will let us know the viral load in her spinal fluid and how well the medicine is working. There are some good theories about her body temp, sodium, glucose, electrolytes, and blood pressure. The best way to confirm this will be to get a PET scan. This can only occur when her sugar water is eliminated. This would be helpful information, so please pray for wisdom and guidance in this area. Alex arrived safely and is now going to be holding the night time vigil. Tracy is glad to be sleeping in a bed at night. They changed sleep chairs on him last night...it didn't lock in position which isn't safe for ICU patients so it was sent for repair. Boy, he didn't like the one they brought him because it wouldn't lay down enough. One of the doctors came in today and made a comment about how far we've come in the last 2 weeks. He said that it is hard to believe that 2 weeks ago they thought she was going to die. He also commented on the one other person who he personally saw recover from this(who wasn't near as bad as Kelsey). He said a year out he is still recovering, and it is a longggg process. We are not taken aback by this. Kelsey has always taken a long time to recover from anything. Plus, we are hopeful that God is not done, His timing is perfect, His healing will be complete. We will continue on this journey all of our lives. "Trust in Me with all your heart and mind, and do not lean on your own understanding. In all your ways know, recognize, and acknowledge Him, and He will direct and make straight your path." Proverbs 3:5-6

Love,
Mom