Today is 10 weeks after she got her cord cells. Wow, more not good news today. So we already know that this fungus in the sinus is bad, well it is very bad. The Granulocyte transfusion is only a temporary help. It won't get better until she has an immune system, namely lymphocytes. She is still not producing anything, nor does it look like she will. The results from the LP came back showing the virus is getting worse, but not significantly. Since the 2nd med was stopped 3 weeks ago, the fact that it has only progressed this much means the first drug is holding it at bay. Same situation, it won't go away until she has an immune system. What is happening now is that the adult match they would like to get is being contacted, then if it's a go, then current testing will occur, 5 days of the prep, then collection, then Kelsey will get 4 days of wipeout chemo, then the cells. If it is fact going to be 2 weeks until she gets cells, then she will get more of the 2nd med to continue to treat the brain virus and the granulocyte transfusions. It was a tough day of news. News that wasn't shocking, but news that puts a frown on my face. Do I just keep hoping each day that this is the day she will be healed, or do I just not expect anything to keep from feeling down? I think that sometimes living in just that day is not having any expectations at all. Just live that day to His glory. Thinking ahead to healed or not healed is just too far ahead right now. Any thoughts? Anyway, it has been a tough day for me, for her, her temp has been down to 35, and it has been awhile since it was that low, actually Jan. 2. When this happens she loses all things normal. She is extremely confused. I have a few more things to do for her, then I'm off to rest. Thank you for praying and standing with us during this huge bump in time.
Love,
Mom
Subscribe to:
Post Comments (Atom)
A couple Sundays ago, my pastor spoke on not being offended at God. I do not have all my notes in front of me and I have a child in my lap, but the verse that I specifically remember is Ephesians 6:13, "Therefore take up the whole armor of God, that you may be able to withstand in the evil day, and having done all, to stand."
ReplyDeleteJust "stand"ing is progress sometimes. You get knocked down, but you choose to stand up again. Sometimes, you don't have the strength to take a step, but having done all, you can stand.
Please know that many people are standing with you. Blessings to you and yours.
Tammy, you and Kelsey are well connected to the Body Of Christ. Parts of the Body all over world are continually hoping, expecting and asking for miracles on your behalf. You have all done exceedingly well living for His Glory. We know God is being lifted up. Thanks for sharing your journey and your heart.
ReplyDeleteBlessings and love,
Carmel
Continuing to pray X 3 for your courageous child and her courageous family.
ReplyDeletePraying for Peace.
Jana, Chad, and Ruby-Kathleen
The first thing that came to my mind as I read this entry was Jesus' words about worrying (Matthew 6:25-34). He is sovereign over today and all of our days to come. Just live each moment by the grace that He provides. He cares so much for you and will take care of each day as it comes.
ReplyDelete"But seek first his kingdom and his righteousness, and all these things will be given to you as well." (Matthew 6:33).
And Carmel is right...each member of His body will intercede for you as the Spirit leads.
We love you all and will NEVER stop praying!!!
In Our Gracious Provider,
Paul, Susan, & girls
During one of the darkest days of my journey, this is what my little flip calendar (by Max Lucado) said:
ReplyDelete"Call on the Specialist:
God is a Specialist at making something useful and beautiful out of something broken and confused."
Papa (God) is carrying you and your family right now.
He is living through you to your daughter and your family and to all who read this blog each day.
Praying Papa gives you a great big bear hug today!
We love you Kelsey!
Patrick, Jolene, and Judah Corkwell
Modesto, Ca
Continuing to pray for each of you..Come unto me All who are weary and I will give you rest...Lean on the LORD..what a sovereign God we serve..Praying God's will be done. Praying for peace and contentment..Praying for God to perform a miracle..praying that God's love and peace gives you courage and strength to comfort and care for each of Kelsey's needs..Praying that you can rest so you can enjoy every precious moment with Kelsey..praying for peace and wisdom and discernment in each decision..praying for wisdom for her doctors and caregivers..praying for each of you with the love of Christ,,,words seem inadequate but Tammy your strength comes from the Lord..I thank HIM for all he's done and all He is going to do..Love, Dianne Orr Hartzell TRUST HIM
ReplyDelete