Day 64

Joanna held vigil last night. Thank you God. Having new nurses dealing with Kelsey is hard enough, but then add all her weird symptoms that require immediate attention and that makes for a real vigil. This morning an unscheduled trip to ultrasound her kidney had Joanna on her toes to keep her bundled to stay on top of that trip. All in all the day is going well. Love being back on 1NW. Her address is:
NIH
9000 Rockville Pike
Bldg.10/ CRC Room 1NW1648
c/o Kelsey Koch
Bethesda, MD 20892
There have been some subtle mental changes(worse) that have us concerned that the brain virus may be worsening since off the Ganciclovir although not enough to say put her back on it. The next few days will give us some signs, another LP and another MRI will give quantitative data. After gathering some data a decision will be made. What we hope for in the meantime is that the immune system makes a huge jump that can be visibly seen in the lab. Once she has this immune system, it can fight the brain and other viruses without any more harmful drugs. This will put some big smiles on people faces around here.

Words of Wisdom passed on from Joanna's husband Jason,
Colossians 2:1-5 (The Message)
¹ I want you to realize that I continue to work as hard as I know how for you, and also for the Christians over at Laodicea. Not many of you have met me face-to-face, but that doesn't make any difference. Know that I'm on your side, right alongside you. You're not in this alone. ^2-4I want you woven into a tapestry of love, in touch with everything there is to know of God. Then you will have minds confident and at rest, focused on Christ, God's great mystery. All the richest treasures of wisdom and knowledge are embedded in that mystery and nowhere else. And we've been shown the mystery! I'm telling you this because I don't want anyone leading you off on some wild-goose chase, after other so-called mysteries, or "the Secret."
⁵I'm a long way off, true, and you may never lay eyes on me, but believe me, I'm on your side, right beside you. I am delighted to hear of the careful and orderly ways you conduct your affairs, and impressed with the solid substance of your faith in Christ

isn't it amazing how in the grand scope of Christianity that we can become woven together with such a great love for those whom we have never seen. It takes work, it takes time but if we allow ourselves to not just pray but learn about those for whom we pray and truly lift their burdens to the Lord we begin to feel by their side. I remember feeling this as I prayed for the miners trapped in Chile and I find it also when I pray for any of those whom you may request me to pray for. I take great joy in this as well as I know that you do too for we have been woven in the grand tapestry of God.

Thanks Jason. I really appreciated this insight.

Love,
Mom