Day 19

The word today is that it did come up positive, but they currently don't know if that is 1 or many. They will be tapping the Ommaya again tonight at 5:00 with all our hopes being it will come up negative next time. They will be stopping the nasty medicine because it is messing with the graph and because her liver numbers are even higher today. They think the liver number is from the nasty medicine because of the correlation, but it could also be GVHD so hoping it is not the latter. This will pan out after stopping the medicine. The biopsy probably is leaning toward the GVHD of the skin, so will treat it with a steroid cream and see what happens. Good news is that she is still doing well. She had a horrible sleeping night, so I hope she gets some rest today while still eating enough calories before the tap tonight. Thanks for all your prayers! Please stay on your knees as we still have a long way to go with many bumps looming before us. Pray God lights our path and keeps is straight. Proverbs 3:6, "in all your ways submit to him, and he will make your paths straight."
Psalm 119:105, "Your word is a lamp for my feet, a light on my path."

Love,
Mom