Karly woke up today with more of the stomach ache. She also has Thrush. They aren't sure how far down her throat it goes, so she was started on an IV fungal drug. She has been pooing a lot, mostly diarrhea. Nobody has the answer, but the hope is that this too will pass over the weekend. It could be a result of the decrease in the narcotic. The stomach ache could be related to the Thrush. If it remains, it will be more closely looked at on Monday.
Our Dr. told us today that the person they were looking at was NOT a match. We still need a 9 out of 10 OR 10/10 match. We talked about the double cord blood transplant, but it is certainly not ideal. The recovery is much longer resulting in a greater risk of infection. The patient stays neutropenic longer. Please keep encouraging people to join the registry. Kelsey will need her stem cell transplant sooner than later. Our prayer is still for the protocol and donor to be ready SOON. She is still at a great risk. Her liver can handle only so much. There is even a possibility that the new drug would be discontinued if her liver continues to be at risk. We pray that the liver can handle it because the new drug makes her viruses less. I know that this may seem technical to some, but God knows. He knows the exact timing of it all.
May the God of hope fill you with all joy and peace as you trust Him. Romans 15:13
Love,
Mom
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