Tuesday, November 17, 2009

So, Heres the skinny on what happened Sunday :)
On Sunday woke up to feverish, swollen eyes, skin, pain...devil hatin on me makin me miserable.
But I woke up with a song in my heart from the Lord again! He has such a sweet voice... well the one I hear for encouragement anyway. It takes me 2 hrs to get ready, the norm shower of course, but then I have a whole routine I have to do, med stuff, fun stuff :\ So it was early.
But I got the church on time with Alex, cuz he had to report to one of the stations. Already people from our church were filling out forms for the swabs... and this is before 10am!
Not long after 10am the waves of people came to both buildings at the several stations that were going. During the morning I met with some girls from Ball Bearings that were taking pics, asking Q's and setting up a time for a formal interview. Star Press sent someone to take pics.
Strangers, it seemed like hundreds, would come up to me and ask questions, converse, shake my hand and/or hug me! All the people that helped with set up, planning, or working a station were crazy busy, but beaming! God was sustaining such a positive attitude throughout the whole event.
At this point I want to tell you about the stats. When my mom had first talked to the Be The Match contact she originally said 400 kits would be good, and a goal of $10,000 to cover those kits. We decided we wanted 600 so she said thats great, but a lot, so we would probably have plenty left over...to use elsewhere!
Well, while I was campaigning/spreading the word I had a chance to talk to several full classes thanks to involved professors. I was also able to get in the paper and on several radio stations before the match drive. At a few points in time while discussing the amount of kits with some profs and some students they started encouraging me that 600 was not enough... that we needed more! Encouraged by this I told my mom over the phone about the conversations, and not to under estimate. I said it is better to be safe than sorry. So she contacted the lady at BTM who thought t was incredible, but sent 200 more kits! Get ready for this next part... Here is God's provision...
We used up ~860 kits in those 6 hrs...and when we looked in the last box there were 12 kits remaining!!! We used ALL 800 and got over 70 extra from where we know not!!! Tears flooded my eyes! AND THEN I heard the count on the money. We were shooting for $10,000... We raised over $25,000!! in 6 hrs!!!
And to this I say
DO NOT PUT LIMITS ON GOD or what He can do through humans... even though we are small, HE IS INFINITE!!
My mom was in tears when we were able to tell her how everything went. Our family is so touched! We are so blessed and feel so much love. We encourage you all to keep praying, and know that we feel your prayers!
But this is not the end.... No this is just the beginning. Karly and I must still battle every single day. So, we are still pushing for more people to keep registering. The more that register> the greater are our chances at a match!

Thursday, November 12, 2009

I have again been meaning to post here a little more often... it just doesnt happen.
Some good news about the Donor Drive that is just days away is: Sooo many people have been asking me questions, want an interview... professors want me to talk to their classes! I wouldnt have it any other way, getting Karly and my picture in the paper, on fliers, people are hearing our struggle. I have an on air interview for a radio tomorrow (Fri) morning and just got off the phone doing a recording for MOODY radio. People are even trying to get us on the Oprah show! Crazy I know.
Some unfortunate news is that it is looking like Karly and mom will not be making it back for the Donor Drive. Mom says pretty much everything has been worked out and taken care of, so I shouldnt have to worry about anything that day... .. ...
But I want them there! I am saddened they will not be there; mom had me tearing up on the phone while I was trying to drive :(
Its been a crazy week so I feel exhausted...worn.
This morning I had every intention of meeting with someone, but I had to rainheck and make a diff time...just felt awful, eyes swollen, skin, etc. I finally was getting showered and waking and then a song started playing in my head. God was singing to me the song Stay Strong by Newsboys. Here are the lyrics:
You're in the moment now
A bitter rouse
A wandering eye and then
The ties that bind start wearing thin, within

You're in the moment now
When all that you've been blessed with
Is not enough
Here's where the ground gets loose
Here's where the devils call your bluff

Stay strong
You are not lost
Come on and fix your eyes ahead
There's a new dawn to light our day, our day
You've gotta stay strong
You and I run
For the prize that lies ahead
We've come too far to lose our way, our way

We've seen the tragic flaws
The tortured souls
The saints with feet of clay
Here's where sin becomes cliche'

We've come through wilderness and watched
The cloud by day
The burning sky into dawn
Have you forgotten who you are?
Did you forget whose trip you're on?


Get up, there's further to go
Get up, there's more to be done
Get up, this witness is sure
Get up, this race can be won
This race can be won

We've gotta stay strong
You are not lost
Come on and fix your eyes ahead
Our Father's dawn will light our day, our day
Come on and stay strong
His grip is sure
And His patience still endures
There'll be no letting go today, no way

Come on, and stay strong
You and I run
For the prize that lies ahead
We've come too far to lose our way, our way.

Can you hear what He was speaking to me? In the bridge- Get Up, This Race Can Be Won!
I will bring Him glory in this battle, because His will is being done... "Everything works together for the good of thos who love the Lord!" Romans 8:28.
Stay Strong! His patience still endures... That is a great thing because mine runs low, I need His!
So many encouragements I heard in that song, I started to praise and dance in my room...no one else here, but the room was full! :)
That is what I had to share with you all. Hope it encourage you!

Sunday, November 8, 2009


Wow, so I have not blogged in here for a while. Sorry about that. I am just not good at writing, nor do I really enjoy it.
There are many reasons to why I have not updated in a while. But anywho you shall get the gist of it as I go.
A little over two weeks ago during my 1 or 2 days of Fall break (while my mother was still in Kazakhstan on a missions trip) and also while I was @ NIH(Maryland) for that break, my grandfather (my mothers father) was taken to the doctor by my grandma. The doctor took one look at his stats and said take him to the hospital now. So, they went to the hospital. My family about lost my grandfather that night, and the next night was close as well. Luckily, with many people praying he pulled through... However, he is on hospice now :(
Part of the stress was the fact that for many of those days mom and I were not even in state; another was that both Karly and Trent were sick (pukey, fluish sick), therefore could not visit grandpa; nor could anyone from our household for fear of giving him something. We were all powerless and helpless.
God was there... or I wouldnt be writing this.
Next in line... My sister!
We have chronic pain... SOME of this is from our sinusitis (chronic sinus infection basically), and frequent ear infections(otitis media)... all this causes frequent headaches. Common colds-PSH...whatever wimps. We have very high pain tolerance... but Karly just this past week started experiencing some major headpain, and to make things mysterious, double vision. We called our NIH doc after she couldnt shake it after 2 days... on the third day our doc told us to take her to the ER.
Normally, for any person this is a good idea. However, everytime Karly and I hit up the ER we get into more complications and pain in the you-know-what, and no answers. Doctors trained in ER techniques do not have the way of thinking nor the history they need to treat patients like Karly or myself. We are just too rarified. Underestimations are the understatement... even when they try and act smart and nod like they know what we are telling them.
Her visit was ridiculous and made me quite furious, after my mom told me everything that happened late that night. I will not go into it, or I will get all hyped up again... but it was unacceptable... as predicted... which is why I refuse to go to them now!
They went to the ER in the evening, got back from it in the wee hours of the morning... I spoke to my exhausted mom on the phone a little after lunch the next day while she was driving on the way to the airport. Guess what? My doctors, after talking with the ER resident doc, didn't like it either!!! HA! So, my doc had Karly and mom on a plane to NIH (Maryland) ASAP. When they arrived and were signed in, Karly was immediately given the MRI (she should have had!) with contrast. As of right now, they see nothing out of the ordinary, for Karly, on the scan. She had plenty of blood taken, saw a neurologist and optometrist, and had a LP (lumbar puncture). She had good spinal fluid from what we know so far, and her eye pressure was good, preliminary blood results dont show anything weird yet. As of right now, we dont know whats up. We can only pray.

During all this the stress has been beating me down. My health is precarious and sucks already... this week I have not managed my class load, and have been in bed way to stinkin much. But all I can tell myself is that I have to... if I want to keep going. God is certainly sustaining my family. And we are breathing miracles every day.
Last week, one of my friends asked if I would go to his church and let some people lay hands on me in prayer. It was powerful. No instantaneous healing... but peace and encouragement needed. The healing will come. And that is what I want to say before I end this.
There is going to be healing... some say forget the doctors and look for instantaneous healing or healing in a little while over time... some say I am already healed and have not accepted it... whatever.
I am telling you... I PUT NO LIMITS ON GOD... he could have "healed" me years ago, he could "heal" me tomorrow... or he could be using this rarified situation, this almost experimental procedure for my case to give hope to the next few cases like my sister, and "heal" me in the process... OR he could chose to take me home and I would be "healed".. out of this gross earth suit to something much more fitting :)
I am in his hands and have given this to Him years ago. Karly is in His hands, my grandpa is in his hands, my triplet boy cousin is in His hands; this family is firm in the faith of Christ's blood and its healing power. And wherever He carries us, is where we want to be! :)