"Today marks 5 years since my bone marrow transplant, and I can hardly believe the many changes that have happened since then. I finished my degree, passed the physical therapy board exam, moved to a new city to live on my own, got my first full time job in a rehab hospital which was my dream since I was 15 y.o., and I have made so many new friends. I am living a life I hardly deserve. Blessed beyond measure, but that is what my God does. He wants all of His children to live their best lives full of love, joy, peace, friends, family, and united with Him. I believe I am only alive today because this great God has plans for me that will build his kingdom, and I am determined to try my best to share his Good News! The trials I have faced I will share with others, and point out where God was the one carrying me. Praise the Lord for his infinite mercies, ever present love, and grace that has been poured out as many as the rain drops! His goodness knows no bounds, and He cares for His children as if they were a fragile, new born chick. Tell someone about how God has changed your life today!" Karly
Tuesday, April 21, 2026
January 2019
Hi to all who find this page again. I think an update is needed to hear the further miracles God has given Karly and life updates. I will start posts that she has shared from 2019: marked as Kelsey's 8 yr homegoing and Karly's 5 yr transplant birthday.
"This has ALWAYS been true, but I usually figure this out as I reflect on the steps I've taken. For me 2018 represented transition, which leads this year into new beginnings. Finishing school, passing my board exam, finding a job, and then moving to a new city. I am settling into a new chapter of life that feels like it took forever to get to, but that is when I am reminded that life happens in the journey. Your lessons are learned on the way, and you can't just skip ahead. God has the plan step by step, and there is purpose to everything He does. Last year I challenged myself to live in the moments, which I was successful and non-successful at throughout the year. This year presents in the challenge of living on my own and figuring out the new aspects of life I have not navigated yet. But I am up to the challenge, I am ready to learn and fail, and get back up again! In the preparation of the journey, I am ready to go. With family and friends on my side, show me where to go, Lord!" Karly
Thursday, February 6, 2020
9 years ago Kelsey's Homegoing
Karly's thoughts 2020:Reading this still pumps the blood through my veins faster. I remember this day, not perfectly, but the emotions are fresh. I have those momentary flashes of memory from her last day, and as much as they are not pleasant, I must feel them as I remember her. My beautiful sister. So smart, caring, kind. Never knew a stranger. Willing to lead the way. As life goes on, I give credit to you. You made such a daring sacrifice that I get to see the fruit of. It's beautiful, sis. The DOCK8 lives that are saved now because of you, including mine. Gosh, I miss you, but I wouldn't be here if you were. Someone had to do it, and you said it had to be you. So many times, I want to share my life experiences with you, but I can't. I still don't always understand why, but I know I will always be thankful for you. I praise God that you are dancing with Him in Heaven. Surely enough, we will see you again. A hope that I strongly cling to. I try to live better with this chance at a second life, because of you, and you still inspire me to push myself harder. I can only praise God for His marvelous plans, and live to tell His story. This life I live is not my own, and I must use it the way you did. As a living sacrifice to others. Thank you, Kelsey E. J. Koch for the life you lived so well! ♥️
Thursday, February 2, 2017
Kelsey's 6 year home-going anniversary
Saturday, September 24, 2016
An unexpected gift...
As for me, I'm getting my legs under me again...hopefully a better me from learning so many lessons from my Lord and Savior. He is taking me in new directions, new ministries. I'm very excited! All I can say is live each day fully doing His will...not your own.
James 4:14-1514 Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes.15 Instead, you ought to say, “If it is the Lord’s will, we will live and do this or that.”
Matthew 6:3434 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.
Sunday, July 31, 2016
2 Years Old
It was an extremely packed week full of appointments and meeting with old and new friends. We feel so blessed every time we meet a new dock8 family. It feels good to be able to share that bond with those that really "get it" and "live it." For Karly, it's a rare opportunity when she can talk with someone who can even remotely begin to understand what a life of terminal/chronic disease is. She would probably say that is her favorite thing about going back to NIH.We get questions like, "What is the worst thing about the haplo-bone marrow transplant," "When do you lose your hair," "When did you go outpatient," and "Where are the best places to go during your outpatient stay?" We pray for them to make it through the transplant and talk of hope.
Karly's tests are improving. Her kidney number, although still high, was the best it's been in 2 years. Her heart numbers are remaining steady. Her BP is great with medication. She dropped one medication for which we are thankful(we were hoping for more to be dropped). Her PFT tests showed numbers she hasn't seen since 2009. Her adrenal insufficiency has been a slow climb over the last two years, but we saw it increase from 1-8. The normal number is about 20, so she still has a long way to go (rats). She received 9 vaccines and did super well with all of them. She had her 4 wisdom teeth removed in the OR under general anesthesia for safety reasons. It went well.
We had fun Wednesday night being escorted by 7 Montgomery County Policemen on motorcycles during rush hour to Toys R Us. It was so cool watching them do their job in front of us. Their was a lot of oohs and awes by the kids and parents. After the kids shopped, we were escorted to a pizza place, then back to the Inn.
The most exciting news is that Karly will be starting the Physical Therapy Assisting Program in August. It will be 2 years long, and she'll receive her Associate's Degree. She longed to do this since her cancer in 2009. When she didn't get into the program last summer, she had to be patient and wait till this year to try again. She re-took the one class she had a "B'" in and received an "A". God's timing is perfect, and her body is ready to withstand the rigors of the program. She is so grateful and beyond excited..which doesn't even begin to describe how she feels. We are so proud of all she has persevered through and the young woman she is. God is using her on the Ivy Tech campus, the Oneighty program, her Bible Studies, and I cannot wait to see what this next chapter brings.
I will end with Karly's life verse. It seems quite appropriate. Proverbs 3:5-6:
"Trust in the Lord with all your heart,
and do not lean on your own understanding.
6 In all your ways acknowledge him,
and he will make straight your paths."
Wednesday, May 25, 2016
2 months before the 2 yr anniversary of her experimental transplant
I have been remiss in keeping you all updated. Since February, Karly has been fighting some kind of infection in or around her eye. We first thought it was caused by her sinus', but after treatment of that, we saw no improvement. Then she tried an eye drop antibiotic...not much improvement. Then a different eye drop antibiotic...again no improvement. She was bleeding out the corners of her right eye, and it was worsening. Finally, we were allowed to see her eye surgeon who had placed her eye tubes prior to her transplant. He confirmed that she was infected in her lacrimal sac. He said that he needed to make a new tear duct that bypasses the old blocked one. He performed a Dacryocystorhinostomy this morning. It is the surgical procedure usually used to treat most cases of blocked tear ducts in adults and rarely in children.This technique creates a new route for tears to drain out through your nose normally again by developing a new connection between your lacrimal sac and your nose. He said she was abscessed and no amount of antibiotic would have worked, so we are grateful that she was diagnosed and now treated. We hope for a speedy, painless recovery. She can't do anything for 48 hours, then about a week of taking it easy.
Karly turned 22 on Monday. She reflected that she will be outliving Kelsey who died at the age of 22. It is both a sad memory and a happy one. She celebrated with her boyfriend, Zach and also her family. We are grateful for every birthday of everyone. We take nothing for granted. We hope you count the cost of life everyday. God has a plan for YOU. Don't waste it. Living life centered on God's purpose for us is amazing. Karly has had an amazingly, God-awed year. Ask her about it sometime when you have time to listen. God is good all the time!
Thank you for standing strong with us throughout the years. I hope to do a better job communicating, but thanks for your patience.
Love,
Mom







