Tuesday, April 21, 2026

July 2019

"Today marks 5 years since my bone marrow transplant, and I can hardly believe the many changes that have happened since then. I finished my degree, passed the physical therapy board exam, moved to a new city to live on my own, got my first full time job in a rehab hospital which was my dream since I was 15 y.o., and I have made so many new friends. I am living a life I hardly deserve. Blessed beyond measure, but that is what my God does. He wants all of His children to live their best lives full of love, joy, peace, friends, family, and united with Him. I believe I am only alive today because this great God has plans for me that will build his kingdom, and I am determined to try my best to share his Good News! The trials I have faced I will share with others, and point out where God was the one carrying me. Praise the Lord for his infinite mercies, ever present love, and grace that has been poured out as many as the rain drops! His goodness knows no bounds, and He cares for His children as if they were a fragile, new born chick. Tell someone about how God has changed your life today!" Karly



January 2019

Hi to all who find this page again. I think an update is needed to hear the further miracles God has given Karly and life updates. I will start posts that she has shared from 2019: marked as Kelsey's 8 yr homegoing and Karly's 5 yr transplant birthday. 

"This has ALWAYS been true, but I usually figure this out as I reflect on the steps I've taken. For me 2018 represented transition, which leads this year into new beginnings. Finishing school, passing my board exam, finding a job, and then moving to a new city. I am settling into a new chapter of life that feels like it took forever to get to, but that is when I am reminded that life happens in the journey. Your lessons are learned on the way, and you can't just skip ahead. God has the plan step by step, and there is purpose to everything He does. Last year I challenged myself to live in the moments, which I was successful and non-successful at throughout the year. This year presents in the challenge of living on my own and figuring out the new aspects of life I have not navigated yet. But I am up to the challenge, I am ready to learn and fail, and get back up again! In the preparation of the journey, I am ready to go. With family and friends on my side, show me where to go, Lord!" Karly




Thursday, February 6, 2020

9 years ago Kelsey's Homegoing

I made this post the day she died..Feb.2, 2011: Continual dialysis, ventilator, & more drugs than they can keep up with, another line placed in neck. Told night nurse to watch out for miracle. Hoping. Praying. Tracy's here. Angie helping by day. Kelly holding night vigil. Walk by faith, not sight! -Mom

Karly's thoughts 2020:Reading this still pumps the blood through my veins faster. I remember this day, not perfectly, but the emotions are fresh. I have those momentary flashes of memory from her last day, and as much as they are not pleasant, I must feel them as I remember her. My beautiful sister. So smart, caring, kind. Never knew a stranger. Willing to lead the way. As life goes on, I give credit to you. You made such a daring sacrifice that I get to see the fruit of. It's beautiful, sis. The DOCK8 lives that are saved now because of you, including mine. Gosh, I miss you, but I wouldn't be here if you were. Someone had to do it, and you said it had to be you. So many times, I want to share my life experiences with you, but I can't. I still don't always understand why, but I know I will always be thankful for you. I praise God that you are dancing with Him in Heaven. Surely enough, we will see you again. A hope that I strongly cling to. I try to live better with this chance at a second life, because of you, and you still inspire me to push myself harder. I can only praise God for His marvelous plans, and live to tell His story. This life I live is not my own, and I must use it the way you did. As a living sacrifice to others. Thank you, Kelsey E. J. Koch for the life you lived so well! ♥️

Thursday, February 2, 2017

Kelsey's 6 year home-going anniversary

Six Years Home and Still His Miracles


I pray you have the endurance to stick with this story and see God's amazing love and grace to all of His creation. This story just might release you from the burden of who's in the White House or who is or isn't allowed in the country or any of the other current distractions. This is a story of God's love for all the world. And it starts with my Kelsey's journey through her life.
Some may say this is just an attempt at this old man's search for meaning in a meaningless situation. That coincidence is playing tricks on me. But I think not. Piecing this story together is going to take some time. There are some details that you need to know to truly understand my vision of what I believe God is up to. So I begin with some facts.
Fact one, I used to coach basketball at Monroe Central years ago. I got out of it because my family needed the time it was taking for their coaching needs. I really have not desired to be involved with MC basketball since I left. Up until last Tuesday night, I hadn’t been to a varsity game at our high school gym since then.
Fact two, one of the friends I sat with at the game Tuesday I literally see twice a year at the opening and closing faculty meeting we have each year for work. We used to have other interests years ago being that we were both home schooling parents and our children interacted in home schooling coops. In fact, this is where Kelsey and his son met and dated for a time.
Fact three, my friend from the game hadn't been to many games this year either, this possible was the third.
Fact four, Kelsey's home going was 6 years ago on the second of February.
So with these facts let me try to explain what I see as God marvelous grace and love for all people.

I have recently had this strange interest in the girls’ basketball team. Yes, there are many former students, and yes, they are achieving record breaking feats. But, there have been other MC sports with the same kinds of successes, and I wasn't drawn to them like I have been to this team. Something else seemed to be pulling at me to go see this team play. So I did. I went to their last two regular season games. And they are good and entertaining. After the last regular season game, I told my wife if they got out of their sectional, I may want to watch them at state. But, I really had no plan to go to any sectional games as they are in a tough sectional, and I didn't want to go and watch them possibly lose. My thought process was, “Let them prove themselves and then I'd spend the money.” But something told me I needed to see them in that Tuesday night sectional opener. So, I went last minute and didn't plan on sitting with anyone. I hadn't told anyone I was going until that evening.
Coincidence or divine appointment, you decide.
So I sat down and was watching warm-ups and my friend, the one I see twice a year, comes and sits next to me. He too doesn't know why he decided to come but he likes the team and all that stuff. We begin having pleasant conversation. During this conversation, we go back to a time when we were looking for a miracle for Kelsey and Karly and had a stem cell drive at my church. Neither he nor his son went to my church at the time and although his son had dated Kelsey, they were simply friends. But because of their friendship, he had participated in this stem cell drive. Fast-forward to the ball game. My friend tells me that his son had recently gotten a call from the stem cell registry and he was a match for someone in Australia. His son had begun the process of donating his stem cells for transplant to Australia.
Kelsey knew that the chances of finding a match for her were like winning the lotto. But one of the reasons was she wanted to run the drive was to help others. She was trying to do her part so that God could do His part, possibly for her, but certainly with the thought that somebody else may find their match as well. I knew Kelsey's heart in this. Her transplant was to go second (after Karly) but wanted to go first in hopes that, successful or not, they would know more about this untried procedure before Karly had to endure it. Since Karly had the cancer, she was scheduled to go first. Then that changed when Kelsey's health diminished in her last months before transplant. Her heart was for the research, the ground breaking leading to cure.
So here we are, over six year past her passing, and I am at a basketball game hearing about how Kelsey's effort has again been responsible for the possibility of another life changing miracle. I should mention that Kelsey's failed transplant led the transplant team away from that method to other methods that have had great success including Karly's victorious transplant.  But this is just another in a long lists of things God has shown me my daughter's life has had a major role in achieving.
So to recap, because of Tammy and my religious convictions and Kelsey's health issues, we choose to home school. Kelsey meets a young man and because of their friendship he joins Be The Match. Over six years later, someone around the world is found to be a perfect match to that young man and will be receiving the life giving stem cells he needs in a transplant. And I hear about this miracle “2 days” before the anniversary of my Kelsey's home going.
You can think what you want. I believe God knew this man in Australia would need this transplant from the beginning of time. He has orchestrated this whole process to get those cells for him. God cares for His people and has a plan for their lives. And he reminds me with this precise timing just so I can brag about his marvelous grace and love.
What a wonderful life my daughter got to live. Oh, it was tough as nails but in hindsight she was a blessing to so many. And now you know the rest of the story. Praise GOD! :)
One parting thought. God's love is personal! He love's that person in Australia with this miracle gift and he loves me with His words of confirmation, and he loved Kelsey with His special mission only she could have accomplished. And His love is personal for you too!


Dad

Saturday, September 24, 2016

An unexpected gift...

Yesterday was Tracy's birthday. In my email inbox was an article that Karly's doctors wrote about her transplant as it was the first, quite the big deal, and even more so since it's success. The article is in press, so I cannot share it with you all yet, but is was such a huge blessing. Just 7 years earlier on that same date, yes, Tracy's birthday, the New England Journal of Medicine published the first DOCK8 article sharing the stories of 11 people, 4 of whom had already died, and 2 being Kelsey and Karly. It seems like we have come full circle....maybe. I have no idea what God has in store for Karly's life, but we are so grateful that she has one. She is SO grateful to be living life as a college student. It is so hard for her, but she's not letting that stop her. She is ministering to the college students and making a difference. Please pray for her cognitive processing to be healed as it really deters her learning, yet she is coping. Please pray for her in ministry. Please pray for her healing to be completed. Continue to pray for our dock8 families. The road is long, tough, and uncertain. The haplo-identical bone marrow transplants have been going very well lately. I think I mentioned earlier that Karly was the first, the second survived, the third died, the fourth survived, the 5th died, and since then they have all been successful. They are learning from each one of us. We are thankful for these strong families. Whenever you think of us, please pray for them.

As for me, I'm getting my legs under me again...hopefully a better me from learning so many lessons from my Lord and Savior. He is taking me in new directions, new ministries. I'm very excited! All I can say is live each day fully doing His will...not your own.

James 4:14-1514 Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes.15 Instead, you ought to say, “If it is the Lord’s will, we will live and do this or that.”

Matthew 6:3434 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

As always I thank God for you, our prayer warriors, our family, our friends.
Love,
Mom

Sunday, July 31, 2016

2 Years Old

We just spent Karly's 2nd birthday at the NIH in Bethesda, MD. She received Tyler's life-saving bone marrow 2 years ago on July 25, 2014. That time was full of the unknown, yet we were at peace following God's plan to proceed with this transplant. Little did we know all the benefits that would come of it. There have been many DOCK8 Haplo-transplants since then...mostly with a fantastic outcome. We remember those that didn't make it through their transplant. It saddens us. We start saying, "if only," but quickly dismiss it because it is and always has been in God's hands. His timing is perfect. We stand in awe of Karly's life since the transplant. What a transformation! We've said it before and say it again, "She went from dying to thriving!"

It was an extremely packed week full of appointments and meeting with old and new friends. We feel so blessed every time we meet a new dock8 family. It feels good to be able to share that bond with those that really "get it" and "live it." For Karly, it's a rare opportunity when she can talk with someone who can even remotely begin to understand what a life of terminal/chronic disease is. She would probably say that is her favorite thing about going back to NIH.We get questions like, "What is the worst thing about the haplo-bone marrow transplant," "When do you lose your hair," "When did you go outpatient," and "Where are the best places to go during your outpatient stay?" We pray for them to make it through the transplant and talk of hope.

Karly's tests are improving. Her kidney number, although still high, was the best it's been in 2 years. Her heart numbers are remaining steady. Her BP is great with medication. She dropped one medication for which we are thankful(we were hoping for more to be dropped). Her PFT tests showed numbers she hasn't seen since 2009. Her adrenal insufficiency has been a slow climb over the last two years, but we saw it increase  from 1-8.  The normal number is about 20, so she still has a long way to go (rats). She received 9 vaccines and did super well with all of them. She had her 4 wisdom teeth removed in the OR under general anesthesia for safety reasons. It went well.

                                                                                                                                                                                                                                                                                                                                                                                                               We had fun Wednesday night being escorted by 7 Montgomery County Policemen on motorcycles during rush hour to Toys R Us. It was so cool watching them do their job in front of us. Their was a lot of oohs and awes by the kids and parents. After the kids shopped, we were escorted to a pizza place, then back to the Inn.

The most exciting news is that Karly will be starting the Physical Therapy Assisting Program in August. It will be 2 years long, and she'll receive her Associate's Degree. She longed to do this since her cancer in 2009. When she didn't get into the program last summer, she had to be patient and wait till this year to try again. She re-took the one class she had a "B'" in and received an "A". God's timing is perfect, and her body is ready to withstand the rigors of the program. She is so grateful and beyond excited..which doesn't even begin to describe how she feels. We are so proud of all she has persevered through and the young woman she is. God is using her on the Ivy Tech campus, the Oneighty program, her Bible Studies, and I cannot wait to see what this next chapter brings.

I will end with Karly's life verse. It seems quite appropriate. Proverbs 3:5-6:
"Trust in the Lord with all your heart,
    and do not lean on your own understanding.
In all your ways acknowledge him,
    and he will make straight your paths."

Wednesday, May 25, 2016

2 months before the 2 yr anniversary of her experimental transplant

Hi All,
I have been remiss in keeping you all updated. Since February, Karly has been fighting some kind of infection in or around her eye. We first thought it was caused by her sinus', but after treatment of that, we saw no improvement. Then she tried an eye drop antibiotic...not much improvement. Then a different eye drop antibiotic...again no improvement. She was bleeding out the corners of her right eye, and it was worsening. Finally, we were allowed to see her eye surgeon who had placed her eye tubes prior to her transplant. He confirmed that she was infected in her lacrimal sac. He said that he needed to make a new tear duct that bypasses the old blocked one. He performed a Dacryocystorhinostomy this morning. It is the surgical procedure usually used to treat most cases of blocked tear ducts in adults and rarely in children.This technique creates a new route for tears to drain out through your nose normally again by developing a new connection between your lacrimal sac and your nose. He said she was abscessed and no amount of antibiotic would have worked, so we are grateful that she was diagnosed and now treated. We hope for a speedy, painless recovery. She can't do anything for 48 hours, then about a week of taking it easy. 
Her BP has been high since the beginning of May. Not sure why. We are in a wait and see mode...will it return to an acceptable number or stay high? If it stays high, then the most likely cause is that her renal arteries are blocked again...not what we want. A couple good things with the HBP is that the pressure pushes blood through her kidney better and makes her lasix work better. Bad things are: makes her heart work harder, makes it harder to control potassium intake and possible stenosis. 






Karly turned 22 on Monday. She reflected that she will be outliving Kelsey who died at the age of 22. It is both a sad memory and a happy one. She celebrated with her boyfriend, Zach and also her family. We are grateful for every birthday of everyone. We take nothing for granted. We hope you count the cost of life everyday. God has a plan for YOU. Don't waste it. Living life centered on God's purpose for us is amazing. Karly has had an amazingly, God-awed year. Ask her about it sometime when you have time to listen. God is good all the time!

Thank you for standing strong with us throughout the years. I hope to do a better job communicating, but thanks for your patience.
Love,

Mom