Tyler's Gone, Kelsey's Here!

We had a busy morning on Friday. Aunt Debbie and Deana picked us up. We dropped Deana off at her All-County Junior Choir at Frederick. The rest of us ate at Cracker Barrel. Karly had been wanting biscuits and jam. She was happy. We arrived back to NIH with enough time for Tyler to get a nap and sufficiently say good-bye to Karly. Aunt Debbie returned Sunday for lunch. Karly's muscles are extremely tight and weak. It was difficult for her to walk. I had to highly motivate her to go out with us. Another new found joy of Karly's is Steamed Crab Legs. We had to supply that craving at Red Lobster for lunch. We proceeded to Walt Whitman High School in Bethesda where we enjoyed the concert of voices. Deana is in the center of the photo. Karly was tired from all the activity, but it is always good to get her up and moving. Monday she became neutropenic, and Tuesday acquired the fever. She is on the big dog antibiotics until her counts recover. Kelsey arrived Wednesday. She is having a difficult time...she needs a miracle ...she needs a match. Yesterday I was reading a devotional that said, "Come to Me for understanding, since I know you far better than you know yourself. I comprehend you in all your complexity." Kelsey is complex. "Allow the Light of My healing Presence to shine into the deepest recesses of your being----cleansing, healing, refreshing, and renewing you." What else is there but to rest in His Light? As we are approaching our respite week, the excitement of seeing each other is growing. Also, as we approach our departure from NIH, there is much to do in preparation for leaving. I need to pack a lot of stuff to send home with Tracy. Arrangements for Karly's home care needs to be researched, planned, and arranged. She is still under 100 pounds, and unable to do much of what she used to. She still sees double, her upper lip doesn't work properly, and cannot run or jump. She very much is still Karly, so treat her like you used to. She is funny, witty, and wise. She has been through a major life crisis, but what does that mean? I don't know, and will learn daily how to walk through this time. Thank you to all who are walking this time with us.
Love,
Mom