Saturday, March 20, 2010


I've been busy tracking down boxes for our stuff to make it home. Karly's room is looking bare. She will be discharged on Monday. They are pulling the PICC line tomorrow. When we return from our Ocean City week, she will get her Ommaya chemo on Monday, CT scans on Tuesday, PET scan on Wednesday, clinic visit which sets up plans on Thursday, and hopefully a flight home on Friday or Saturday. We will need to return every 4 weeks until the end of May.

We met with our transplant doctor yesterday. He gave us a tentative plan based on what we sort of know now. The protocol still needs to be approved, but it is getting close...maybe 2 more months...which would mean June. His dream AND our hope is that we still find that perfect match. If no match is found, we will use a double chord transplant. He wants to wait to do Kelsey until we see how things go for Karly. He said they always learn more from the first one which helps the second one and so forth. This is the first DOCK8 transplant in the USA. They have done a lot of transplants both for cancer and immune diseases.

Kelsey, Karly, and I missed another family function this weekend. Trent is on the FIRST Robotics Team 1720. The regional is held in Lafayette. The team made it to the quarterfinals which means they were picked to play on a team in the finals. This is great. They didn't make it out of that round, however, they had a very good showing and played a good game. Trent was the driver again this year, and as I hear it, he drove a mean robot! I hope to see pictures. They should be leaving Lafayette in the next several hours to make their way to Bethesda, MD.

I'm feeling a bit overwhelmed with all the things that need to done tomorrow. Pray for peace, patience, and understanding through it all.


  1. Still praying for you guys. Hope you enjoy Ocean City and come back peaceful and restored!