Karly had tubes placed in both ears and is doing very well. This should help her hear better. She was placed on another antibiotic for a sinus/lung infection on Tuesday. Hopefully this will help with her goopy cough. Her liver test is a bit off, but is being closely watched. All in all she's in a good place. Kelsey is always a stumper. The steroid usage is an issue. It may be the reason she has small cataracts in both eyes. Even before we found this out, they had been trying to figure out how to decrease her dosage. She will be experimenting with a dosage change over the next month. We should know something about the transplant at our next visit & meet with our transplant doctor. The NIH is going to hold a Donor Drive on behalf of the girls on our next visit. Please pray for an outstandingly good turn out. We still have our hopes on an actual match.
Karly and I attended an AFCEA breakfast in June where she spoke on behalf of the Children's Inn. She and the founder of the Inn accepted the $530,000 check presented by AFCEA. We just heard that the AFCEA group was touched and awed by her speech. The Inn recorded a video interview of her(and Kelsey and I) expressing our gratitude for having a place to go to while undergoing treatments, what the Inn means to us, and how it has evolved. They also recorded a public service announcement that expresses her thankfulness for the Inn and encourages others to give. She's becoming quite the speaker. After we landed in Indiana, the doctor called to say that one of Karly's cultures was growing a different bacteria than she had antibiotics for. As always, they are so on top of her every need. Karly & Konner will be attending volleyball camp for three days this week. I know it will be fun for her to be with friends and playing the sport she loves. Please pray for her endurance and strength. Please pray for Kelsey to be able to focus on at least one of her BSU classes over the next month. That's the update for now. God's glory is ever present...look for it.