I would like to share all the links to Karly's story since Oct. 13, 2013 to present on this page of the blog. The first video is Karly's take on how, when, or if to choose a bone marrow transplant without a match. The second video is on Feb.1 after her first-ever of its kind, ground-breaking, pioneering haplo-transplant for Dock8. The third video and story is relating a document we used in March of 2014 to give Karly a voice in the event of her death.
https://youtu.be/Bl-CsLyRJsA
http://well.blogs.nytimes.com/2015/03/28/teen-advance-directive-end-of-life-care/?_r=1
This photo is from March 2015. She is beaming!
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