Friday, March 18, 2011

Day 45-DANCING WITH THE LORD

Can it really be 45 days that Kelsey has been gone? Everyday feels weird in many ways...mostly that she is not part of the happenings everyday. I took the girls to Ritter's. This was something she always enjoyed. I was packing and remembering the mornings getting ready to care for her...picking out sleeveless clothes for the hot temp of her room...putting on the jewelry she loved. I wish that I could still care for her...but not in the hospital...not in that way. I wouldn't want her suffering through that anymore. There is no way I would want to forget her, but the reality of her not here is deep. It seems harder because she lived with us. She was part of everything here. I wish I had more of an understanding of what God is up to. I do see many things and stay open to what He is doing. I trust that whatever He is doing, it will be glorious!

As for Karly, we are not getting into transplant mode anytime soon. That being said, things change, and we are not opposed to it when it becomes necessary. One relief is that a couple more Dock 8 transplants will be happening sometime this year. Two more in Germany will also be occurring. We will be watching these outcomes closely. Again, no two people are the same or have exactly the same symptoms or will react the same. Just getting the protocol tweaked will be important. Something useful is always learned that will help the next person. Karly and I continue to travel to NIH every 3 weeks for her treatments and follow-up. Everyone is so supportive.

Thank you everyone who has fed us, contributed financially, helped out, and prayed for us. I have been to work twice. It has gone smoothly, and my first paycheck has showed up. We are still investigating how best to honor Kelsey. I will report on this when we finally get it together.

The work on the basement is progressing. It doesn't smell anymore, and it is dry. Painting will commence after spring break, then carpeting and trim in the family room. Then starting the bathroom after that. I have been in a cleaning mode some days, so I must confess that when Trent went to Boilermaker, I cleaned his room. He will either thank me or be mad at me. A boy with so many electronic parts may not appreciate the organization from his mom, but rest assured I know where everything is. I haven't decided whether to let him discover this when he gets home or give him a heads up tomorrow. It will be amusing to me either way...maybe it shouldn't be. He will get the response I get, " I love you Trenty!" The Boilermaker for those who may be going "What's that?" is the regional competition for FIRST Robotics. Team 1720 has been working on their bot since January. The bot was shipped in Feb. and they finally got to uncrate it on Thursday, repair and update anything else they needed to do. Today & tomorrow morning are the seed matches with the hopes that they seed high enough to get picked for the finals that begin at 1:00 tomorrow. This is Trent's senior year. He is driving the bot again this year. It takes place in the Armory on the Purdue University campus. Tyler will be joining us there tomorrow to cheer on Team 1720. FUN! Praying for safety for all as they travel!
Love,
Mom

2 comments:

  1. Still praying for you all! It's so helpful to hear how you are doing. We have basement clean up, as well. I hope you can forget it all and enjoy your time at Boiler Maker! I can't get there this year, so cheer extra load for me!

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  2. So, what was Trent's reaction to a clean room? :)
    Great time at Boilermaker! I especially appreciated the opportunity to talk with YOU, Tammy! (See my blog or FB for our photo)
    I am now going through this blog and will come back to it regularly. So far very moving and inspiring! Thank you!

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